* . *
  • About
  • Advertise
  • Privacy & Policy
  • Contact
Friday, October 10, 2025
Earth-News
  • Home
  • Business
  • Entertainment
    MSG Entertainment Takes Radio City Music Hall Into the Future With Introduction of Sphere Immersive Sound – Business Wire

    MSG Entertainment Transforms Radio City Music Hall with Cutting-Edge Sphere Immersive Sound Experience

    Israel’s Entertainment Industry Is Being Targeted by the Left in Hollywood and the Right at Home – The Wall Street Journal

    Inside the Fierce Clash Shaping Israel’s Entertainment Industry: Hollywood vs. Local Voices

    Offset Is Ready To Finalize Divorce With Cardi B for a Major Reason – Yahoo

    Offset Poised to Finalize Divorce from Cardi B for a Major Reason

    Beyond the Stage: 8 Performing Arts Centers Driving Entertainment and Education – Livability.com

    Beyond the Stage: 8 Performing Arts Centers Transforming Entertainment and Education

    Row K Entertainment Emerges as Major New Hollywood Buyer With Splashy TIFF Shopping Spree – TheWrap

    Row K Entertainment Emerges as Major New Hollywood Buyer With Splashy TIFF Shopping Spree – TheWrap

    Charlie Hunnam Reflects on Playing a Serial Killer in Monster: The Ed Gein Story – Yahoo

    Charlie Hunnam Reveals the Dark Challenges of Playing a Serial Killer in Monster: The Ed Gein Story

  • General
  • Health
  • News

    Cracking the Code: Why China’s Economic Challenges Aren’t Shaking Markets, Unlike America’s” – Bloomberg

    Trump’s Narrow Window to Spread the Truth About Harris

    Trump’s Narrow Window to Spread the Truth About Harris

    Israel-Gaza war live updates: Hamas leader Ismail Haniyeh assassinated in Iran, group says

    Israel-Gaza war live updates: Hamas leader Ismail Haniyeh assassinated in Iran, group says

    PAP Boss to Niger Delta Youths, Stay Away from the Protest

    PAP Boss to Niger Delta Youths, Stay Away from the Protest

    Court Restricts Protests In Lagos To Freedom, Peace Park

    Court Restricts Protests In Lagos To Freedom, Peace Park

    Fans React to Jazz Jennings’ Inspiring Weight Loss Journey

    Fans React to Jazz Jennings’ Inspiring Weight Loss Journey

    Trending Tags

    • Trump Inauguration
    • United Stated
    • White House
    • Market Stories
    • Election Results
  • Science
  • Sports
  • Technology
    China outlines more controls on exports of rare earths and technology – fox40.com

    China Unveils Tougher Restrictions on Rare Earth and Technology Exports

    Wisconsin Dairy Leads the Way with Cutting-Edge Technology Systems

    ENERCON and Biome collaborate for wind turbine noise reduction technology – Yahoo Finance

    ENERCON and Biome Join Forces to Revolutionize Wind Turbine Noise Reduction

    US and investors gambling on unproven nuclear technology, warn experts – Financial Times

    US and investors gambling on unproven nuclear technology, warn experts – Financial Times

    Is Light-Speed Analog Computing the Future of Technology? – BIOENGINEER.ORG

    Could Light-Speed Analog Computing Transform the Future of Technology?

    ARM Institute opens technology project call to speed submarine manufacturing – The Robot Report

    ARM Institute Unveils Cutting-Edge Technology Project to Revolutionize Submarine Manufacturing

    Trending Tags

    • Nintendo Switch
    • CES 2017
    • Playstation 4 Pro
    • Mark Zuckerberg
No Result
View All Result
  • Home
  • Business
  • Entertainment
    MSG Entertainment Takes Radio City Music Hall Into the Future With Introduction of Sphere Immersive Sound – Business Wire

    MSG Entertainment Transforms Radio City Music Hall with Cutting-Edge Sphere Immersive Sound Experience

    Israel’s Entertainment Industry Is Being Targeted by the Left in Hollywood and the Right at Home – The Wall Street Journal

    Inside the Fierce Clash Shaping Israel’s Entertainment Industry: Hollywood vs. Local Voices

    Offset Is Ready To Finalize Divorce With Cardi B for a Major Reason – Yahoo

    Offset Poised to Finalize Divorce from Cardi B for a Major Reason

    Beyond the Stage: 8 Performing Arts Centers Driving Entertainment and Education – Livability.com

    Beyond the Stage: 8 Performing Arts Centers Transforming Entertainment and Education

    Row K Entertainment Emerges as Major New Hollywood Buyer With Splashy TIFF Shopping Spree – TheWrap

    Row K Entertainment Emerges as Major New Hollywood Buyer With Splashy TIFF Shopping Spree – TheWrap

    Charlie Hunnam Reflects on Playing a Serial Killer in Monster: The Ed Gein Story – Yahoo

    Charlie Hunnam Reveals the Dark Challenges of Playing a Serial Killer in Monster: The Ed Gein Story

  • General
  • Health
  • News

    Cracking the Code: Why China’s Economic Challenges Aren’t Shaking Markets, Unlike America’s” – Bloomberg

    Trump’s Narrow Window to Spread the Truth About Harris

    Trump’s Narrow Window to Spread the Truth About Harris

    Israel-Gaza war live updates: Hamas leader Ismail Haniyeh assassinated in Iran, group says

    Israel-Gaza war live updates: Hamas leader Ismail Haniyeh assassinated in Iran, group says

    PAP Boss to Niger Delta Youths, Stay Away from the Protest

    PAP Boss to Niger Delta Youths, Stay Away from the Protest

    Court Restricts Protests In Lagos To Freedom, Peace Park

    Court Restricts Protests In Lagos To Freedom, Peace Park

    Fans React to Jazz Jennings’ Inspiring Weight Loss Journey

    Fans React to Jazz Jennings’ Inspiring Weight Loss Journey

    Trending Tags

    • Trump Inauguration
    • United Stated
    • White House
    • Market Stories
    • Election Results
  • Science
  • Sports
  • Technology
    China outlines more controls on exports of rare earths and technology – fox40.com

    China Unveils Tougher Restrictions on Rare Earth and Technology Exports

    Wisconsin Dairy Leads the Way with Cutting-Edge Technology Systems

    ENERCON and Biome collaborate for wind turbine noise reduction technology – Yahoo Finance

    ENERCON and Biome Join Forces to Revolutionize Wind Turbine Noise Reduction

    US and investors gambling on unproven nuclear technology, warn experts – Financial Times

    US and investors gambling on unproven nuclear technology, warn experts – Financial Times

    Is Light-Speed Analog Computing the Future of Technology? – BIOENGINEER.ORG

    Could Light-Speed Analog Computing Transform the Future of Technology?

    ARM Institute opens technology project call to speed submarine manufacturing – The Robot Report

    ARM Institute Unveils Cutting-Edge Technology Project to Revolutionize Submarine Manufacturing

    Trending Tags

    • Nintendo Switch
    • CES 2017
    • Playstation 4 Pro
    • Mark Zuckerberg
No Result
View All Result
Earth-News
No Result
View All Result
Home Entertainment

In China, New Measures to Close Gap in Rare Disease Treatment

March 1, 2024
in Entertainment
In China, New Measures to Close Gap in Rare Disease Treatment
Share on FacebookShare on Twitter

An increasing number of drugs for rare diseases have been introduced in the market over the last year, signaling China’s efforts to align with global standards in rare disease treatment, a new report from the Illness Challenge Foundation and Frost & Sullivan indicates.

The report, released to mark World Rare Disease Day, observed every year on the last day of February, also underscored continuing challenges such as the high costs and difficulties in importing new medications.

An estimated 20 million individuals are affected by rare diseases in the country. They include Gaucher’s disease, an inherited metabolic disorder leading to organ and tissue damage; Moyamoya disease, a genetic blood vessel disorder that can cause strokes; and Osteogenesis Imperfecta, also known as “porcelain doll disease” in Chinese, which causes bones to become extremely brittle and prone to breakage even with minimal force.

As of February 2023, 199 drugs addressing 87 rare diseases were launched worldwide, with China introducing 103 drugs covering 47 rare diseases, just half the global rate.

According to the report, China has since initiated a special process for the expedited review of critically needed foreign drugs. They include orphan drugs, which are specifically developed to treat rare medical conditions but, due to the limited number of patients, would not be commercially viable without government incentives.

The effort has resulted in 15 orphan drugs receiving marketing approval through a priority review in 2023, increasing from just three in 2018. And by the end of the year, China had made available 165 types of rare disease drugs, addressing 92 different rare diseases.

However, the latest list from the Center for Drug Evaluation under the National Medical Products Administration has identified 73 types of urgently needed overseas drugs, with half targeting rare diseases. Yet, only 22 of these have been introduced into the Chinese market.

Experts warn that the gap in the domestic drug supply may drive patients to illegally import medications from abroad, often without proper medical supervision. In 2021, a man from the central Henan province was accused of “drug trafficking” for smuggling Clonazepam, a psychotropic drug used for a rare form of epilepsy that can be addictive with long-term use, for his child.

In response, the government initiated a temporary import scheme for the drug in June 2022 and has since sought to accelerate importing more orphan drugs.

According to Wang Yi’ou, founder of the Illness Challenge Foundation, the absence of a dedicated system to cover the high costs of rare disease treatments also posed significant hurdles.

“Many companies believe patients won’t be able to afford these treatments even if they are introduced. Solving the payment issue for rare diseases would encourage more foreign drugs to enter the market and motivate domestic companies to develop new treatments,” explained Wang.

Echoing similar concerns, Yu Lei, head of pharma giant Sanofi’s rare diseases division in China, said: “(Orphan drugs) priced at 2 million yuan ($278,000) are not a viable option for the majority, particularly if the treatment is lifelong,” he said.

To ensure treatment is more accessible, authorities have included 15 new rare disease drugs under medical insurance schemes. And to further expedite the introduction of overseas drugs and medical devices, special trial zones have been rolled out to facilitate the import of rare disease drugs not yet registered or available domestically.

Contribution: Lü Xiaoxi; editor: Apurva.

(Header image: VCG)

>>> Read full article>>>
Copyright for syndicated content belongs to the linked Source : SixthTone – https://www.sixthtone.com/news/1014731/In%20China,%20New%20Measures%20to%20Close%20Gap%20in%20Rare%20Disease%20Treatment

Tags: Chinaentertainmentmeasures
Previous Post

She’s China’s Biggest Director. Can Jia Ling Finally Get Some Respect?

Next Post

Last Dance: Medical Condition Leads to Deeper Appreciation of Mothers’ Sacrifice

Climate Change Poses ‘Ecological Trap’ for Species Struggling to Adapt – Bioengineer.org

Climate Change Creates a Dangerous Ecological Trap for Struggling Species

October 10, 2025
Science and the heart: Remembering Jane Goodall – American Animal Hospital Association – AAHA

Unlocking the Heart’s Secrets: Celebrating Jane Goodall’s Enduring Legacy

October 10, 2025
Young trucker couple embraces flatbed trucking, balanced lifestyle – Truck News

Young trucker couple embraces flatbed trucking, balanced lifestyle – Truck News

October 10, 2025
China outlines more controls on exports of rare earths and technology – fox40.com

China Unveils Tougher Restrictions on Rare Earth and Technology Exports

October 10, 2025
Midway’s Tate Mason named Week 7 WVLT Sports/5Star Preps Player of the Week – WVLT

Midway’s Tate Mason named Week 7 WVLT Sports/5Star Preps Player of the Week – WVLT

October 9, 2025
FIGO World Congress 2025 closes in Cape Town with renewed global commitment – FIGO.org

Global Leaders Unite in Cape Town to Close FIGO World Congress 2025 with Renewed Commitment

October 9, 2025
Our economic future is a black box – marketplace.org

Our economic future is a black box – marketplace.org

October 9, 2025
MSG Entertainment Takes Radio City Music Hall Into the Future With Introduction of Sphere Immersive Sound – Business Wire

MSG Entertainment Transforms Radio City Music Hall with Cutting-Edge Sphere Immersive Sound Experience

October 9, 2025
See photos from Pitt’s Health Sciences Alumni Weekend – University of Pittsburgh

See photos from Pitt’s Health Sciences Alumni Weekend – University of Pittsburgh

October 9, 2025
U.S. politics is broken because of MAGA Republicans and hard-line Democrats – AJC.com

How MAGA Republicans and Hard-Line Democrats Are Driving U.S. Politics to the Brink

October 9, 2025

Categories

Archives

October 2025
M T W T F S S
 12345
6789101112
13141516171819
20212223242526
2728293031  
« Sep    
Earth-News.info

The Earth News is an independent English-language daily published Website from all around the World News

Browse by Category

  • Business (20,132)
  • Ecology (860)
  • Economy (880)
  • Entertainment (21,753)
  • General (17,506)
  • Health (9,922)
  • Lifestyle (893)
  • News (22,149)
  • People (881)
  • Politics (890)
  • Science (16,091)
  • Sports (21,381)
  • Technology (15,861)
  • World (863)

Recent News

Climate Change Poses ‘Ecological Trap’ for Species Struggling to Adapt – Bioengineer.org

Climate Change Creates a Dangerous Ecological Trap for Struggling Species

October 10, 2025
Science and the heart: Remembering Jane Goodall – American Animal Hospital Association – AAHA

Unlocking the Heart’s Secrets: Celebrating Jane Goodall’s Enduring Legacy

October 10, 2025
  • About
  • Advertise
  • Privacy & Policy
  • Contact

© 2023 earth-news.info

No Result
View All Result

© 2023 earth-news.info

No Result
View All Result

© 2023 earth-news.info

Go to mobile version